Come be part of Osher's recovery!
"We dream of seeing Osher after the complex treatment... ״
"Only a year and a half old and already traumatized by doctors... ״
"The only treatment that will save Osher is gene therapy... ״
"Without treatment, the disease may worsen and lead to death, God forbid... ״
These are the phrases uttered daily by Roy and Liel Asulin, parents of one-and-a-half-year-old Osher, who deals with the neurological disease ALD and Addison's disease, which is known in the United States.
These are the phrases uttered daily by Roy and Liel Asulin, parents of one-and-a-half-year-old Osher, who deals with the neurological disease ALD and Addison's disease, which is known
in the United States.
Come be part of Osher's recovery!
Sweet Osher was diagnosed with ALD and is only a year and a half old!
Without prompt treatment, his condition may deteriorate to death. His parents, Roy and Liel, came to the United States in a desperate attempt to seek help, after there was no doctor or hospital in Israel that could help. The disease is rare and is detected only in 3% of the world’s population, when only in it’s first stages can a life be saved by appropriate treatment.
Today there are 2 options for treating the disease
- Bone marrow transplantation with a 20% success rate
- Gene healing with a 97% success rate!
The gene healing treatment that Osher needs is done only in the United States and costs between $2.5-3 million.
Roy and Liel, parents of two – are not yet thirty years old and are dealing with the situation with great difficulty
ALD is a hereditary disease that attacks the nervous system and mainly affects men at a young age and develops in stages. The ALD patient’s body has difficulty breaking down long fatty acids and they accumulate and damage the adrenal glands and white matter in the brain.
The brain damage is manifested first in attention and hearing disorders, up to a complete loss of hearing and the ability to speak and later, as mentioned, severe muscle atrophy and death.
Treatment can bring Osher back to life. You can be partners in his recovery!
Donate to Save Osher >>>
*The funds will be transferred in full to fund Osher’s treatment*
Recently, the parents received bad news from Osher’s doctor – their son also develops Addison’s disease, which attacks the kidneys. Addison in its advanced stages causes in 75% of cases such a frightening outbreak of ALD.
Immediate treatment is very important!!
***100% of the funds will go to the treatment of Osher.
The state of Osher today
Today, Osher is undergoing intensive treatments and severe trauma from doctors. Blood is taken from him regularly and he is given steroids (for all that this implies) to prevent the outbreak. The parents left everything and moved from Ra’anana, especially to Tel Aviv, near the hospital where Osher is being treated.
In order to recover, sweet Osher will need innovative gene therapy that does not exist in Israel and is done at the Boston hospital. The good news is that gene therapy has a 97% success rate. The bad news is that treatment costs are $2.5 million!
This is an astronomical sum for Roy and Liel, young parents of a 5-year-old girl and a one-and-a-half-year-old Osher, who are in their 20s.
You can be a partner in the recovery of a one-and-a-half-year-old toddler.
***All funds in full will go towards funding the treatment to save Osher***
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